Feb 21st, 2012, 20:32 | #1 |
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很纠结.....
女儿发育迟缓,到现在找不出病因.她的神经科医生是北约克医院的.历经8个月才给我们转到北约克的基因科(今年4月份).同时现在还在病童医院看遗传代谢科.医生说如果查不出来原因,就会转到病童医院的基因科.可是检查至少还要半年的时间才可以.至于什么时候能看到基因科的医生还不知道.都说病童医院的医疗水平世界有名.要在两个中选一个,我很纠结......帮我出出主意吧.
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Feb 21st, 2012, 22:57 | 只看该作者 #6 | |
wicked witch of the north
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http://www.chinasmile.net/forums/sho...7&postcount=29 Sick Kids在全球都属于一流儿童医院,水平非常高,去那看看吧。 坚持! |
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The only question with wealth is, what do you do with it? - John D. Rockefeller
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Feb 21st, 2012, 23:07 | 只看该作者 #7 | |
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Feb 22nd, 2012, 11:27 | 只看该作者 #12 |
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Try some chinese medication or treatment. Even you know the genetic problem, there is no medication to treat. They just let you know your daughter is abnormal and no help. I have mentioned ketogenic diet before. This diet not only to treat the seizure, but also help the brain cure, maybe can help your daughter come out from fog. Get your daughter move as much as possible to help her brain develop. I hope this make a little help for your daughter. The best doctor is yourself to help your daughter.
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Feb 23rd, 2012, 19:51 | 只看该作者 #17 | |
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感谢 秋雨梧桐 此篇文章之用户: |
smellyfish (Feb 24th, 2012) |
Feb 24th, 2012, 13:14 | 只看该作者 #19 |
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Ketogenic diet need doctor and dietitian monitor. I think only sick kids and MacMaster children have dietitian to manage the diet. So maybe your doctor think her seizure is controlled , and don't need to go to ketogenic diet. What medication your daughter is on, did your doctor try to wean the medication? My daughter also develop very slowly since she had seizure when she was Five month. She still can't talk yet except say mama and baba. But she can walk and go to school now. We are also struggling everyday.
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